Jake has taken up running with John. Currently they are running about 1/2 mile 3-4 days a week. He ran his first race last weekend - we were so proud of him.
Over the last few months, Jake has been complaining of his neck hurting. It has gotten worse so last Thursday we let B's ortho doctor check him out. After exam and xrays and a little education on his occular albinism and nystagmus he recommended PT to see if we could help his muscles.
Today we had our first visist. The PT ask Jake lots of questions and one was how often it hurt him during the day. His answer was it hurts mostly all the time except when I am lying down. :(
Then as we talked with the PT, I was answering questions and Jake overheard me tell the PT that his vision was 20/200 and that he was basically legally blind (we were talking in regards to distance from TV & Computer screen). After we left Jake said momma I heard you tell that man I am legally blind. So John explained what that means. Momma had to excuse herself and shed a few tears. Now that Jake is going strong in school we are seeing more difficulties regarding his vision. The PT said we would work on this but that he didn't know how much it would help because we are working against an underlying condition.
It just makes me sad today - that I watch my little one struggle and hurt. Please pray with us that the PT helps - from research it seems that this could be life long for him.
3 comments:
that is such a great picture of jake. i can imagine it is tough to see him struggle but i know you and john will do awesome to help him depend on the Lord and do the best that he can! glad you had a fun day with abby!
I love this picture of Jakey! This breaks my heart to read this. The boys have always done things so well, it has been easier to put their vision out of our minds. I'll be praying for him and for you and John as you learn more about their vision and how to help. Love you guys!
i just read this. so sorry. i cannot imagine that conversation with him. yall are so great though. you and john are so loving and giving. i pray for wisdom for you and the docs and comfort both physical and emotional for jake.
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